volume 17 issue 1 pages 21-41

Exploring Partial Disclosure in Research: Challenges, Justifications, and Recommendations for Ethical Oversight

Publication typeJournal Article
Publication date2024-10-30
scimago Q1
wos Q3
SJR0.413
CiteScore2.9
Impact factor1.1
ISSN17939453, 17938759
Abstract

Deception in research is contentious, as ethical codes stress informed consent, yet complete disclosure may jeopardise validity. Indian Council for Medical Research (ICMR) guidelines classify deception into active, incomplete, and authorised forms. This study explores the ethical justification for incomplete (partial disclosure), permissible instances, and the dilemma faced by ethics committees in balancing scientific rigour and participant protection. The qualitative, non-experimental cross-sectional research, using in-depth interviews, identifies themes through thematic analysis. Findings reveal challenges for ethics committees, as incomplete information hampers understanding, amongst others. The paper proposes an ethics committee framework, urging researchers to minimise or avoid partial deception and recommending institutional awareness campaigns and standard operating procedures for minimal-harm studies using partial disclosure. Therefore, it proposes that partial disclosure should be justified by the 3Vs—value, validity, and veracity to preserve research integrity.

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Akuma I. et al. Exploring Partial Disclosure in Research: Challenges, Justifications, and Recommendations for Ethical Oversight // Asian Bioethics Review. 2024. Vol. 17. No. 1. pp. 21-41.
GOST all authors (up to 50) Copy
Akuma I., Vaswani V. R. Exploring Partial Disclosure in Research: Challenges, Justifications, and Recommendations for Ethical Oversight // Asian Bioethics Review. 2024. Vol. 17. No. 1. pp. 21-41.
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TY - JOUR
DO - 10.1007/s41649-024-00311-7
UR - https://link.springer.com/10.1007/s41649-024-00311-7
TI - Exploring Partial Disclosure in Research: Challenges, Justifications, and Recommendations for Ethical Oversight
T2 - Asian Bioethics Review
AU - Akuma, Ifeanyichukwu
AU - Vaswani, Vina Ravi
PY - 2024
DA - 2024/10/30
PB - Springer Nature
SP - 21-41
IS - 1
VL - 17
SN - 1793-9453
SN - 1793-8759
ER -
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BibTex (up to 50 authors) Copy
@article{2024_Akuma,
author = {Ifeanyichukwu Akuma and Vina Ravi Vaswani},
title = {Exploring Partial Disclosure in Research: Challenges, Justifications, and Recommendations for Ethical Oversight},
journal = {Asian Bioethics Review},
year = {2024},
volume = {17},
publisher = {Springer Nature},
month = {oct},
url = {https://link.springer.com/10.1007/s41649-024-00311-7},
number = {1},
pages = {21--41},
doi = {10.1007/s41649-024-00311-7}
}
MLA
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Akuma, Ifeanyichukwu, et al. “Exploring Partial Disclosure in Research: Challenges, Justifications, and Recommendations for Ethical Oversight.” Asian Bioethics Review, vol. 17, no. 1, Oct. 2024, pp. 21-41. https://link.springer.com/10.1007/s41649-024-00311-7.