volume 67 issue 5 pages 1385-1399

The Association Between Stuttering Burden and Psychosocial Aspects of Life in Adults

Marscha Engelen 1
Marie-Christine Franken 2
Lottie W Stipdonk 2
Sarah Horton 3, 4
Victoria Jackson 5, 6
Sheena Reilly 3, 7
Angela Morgan 3, 4, 8
Simon G Fisher 1, 9
Sandra van Dulmen 10, 11, 12
Else Eising 1
Publication typeJournal Article
Publication date2024-05-07
scimago Q1
wos Q1
SJR0.836
CiteScore3.9
Impact factor2.2
ISSN10924388, 15589102
Abstract
Purpose:

Stuttering is a speech condition that can have a major impact on a person's quality of life. This descriptive study aimed to identify subgroups of people who stutter (PWS) based on stuttering burden and to investigate differences between these subgroups on psychosocial aspects of life.

Method:

The study included 618 adult participants who stutter. They completed a detailed survey examining stuttering symptomatology, impact of stuttering on anxiety, education and employment, experience of stuttering, and levels of depression, anxiety, and stress. A two-step cluster analytic procedure was performed to identify subgroups of PWS, based on self-report of stuttering frequency, severity, affect, and anxiety, four measures that together inform about stuttering burden.

Results:

We identified a high- ( n = 230) and a low-burden subgroup ( n = 372). The high-burden subgroup reported a significantly higher impact of stuttering on education and employment, and higher levels of general depression, anxiety, stress, and overall impact of stuttering. These participants also reported that they trialed more different stuttering therapies than those with lower burden.

Conclusions:

Our results emphasize the need to be attentive to the diverse experiences and needs of PWS, rather than treating them as a homogeneous group. Our findings also stress the importance of personalized therapeutic strategies for individuals with stuttering, considering all aspects that could influence their stuttering burden. People with high-burden stuttering might, for example, have a higher need for psychological therapy to reduce stuttering-related anxiety. People with less emotional reactions but severe speech distortions may also have a moderate to high burden, but they may have a higher need for speech techniques to communicate with more ease. Future research should give more insights into the therapeutic needs of people highly burdened by their stuttering.

Supplemental Material:

https://doi.org/10.23641/asha.25582980

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GOST Copy
Engelen M. et al. The Association Between Stuttering Burden and Psychosocial Aspects of Life in Adults // Journal of Speech, Language, and Hearing Research. 2024. Vol. 67. No. 5. pp. 1385-1399.
GOST all authors (up to 50) Copy
Engelen M., Franken M., Stipdonk L. W., Horton S., Jackson V., Reilly S., Morgan A., Fisher S. G., van Dulmen S., Eising E. The Association Between Stuttering Burden and Psychosocial Aspects of Life in Adults // Journal of Speech, Language, and Hearing Research. 2024. Vol. 67. No. 5. pp. 1385-1399.
RIS |
Cite this
RIS Copy
TY - JOUR
DO - 10.1044/2024_jslhr-23-00562
UR - https://pubs.asha.org/doi/10.1044/2024_JSLHR-23-00562
TI - The Association Between Stuttering Burden and Psychosocial Aspects of Life in Adults
T2 - Journal of Speech, Language, and Hearing Research
AU - Engelen, Marscha
AU - Franken, Marie-Christine
AU - Stipdonk, Lottie W
AU - Horton, Sarah
AU - Jackson, Victoria
AU - Reilly, Sheena
AU - Morgan, Angela
AU - Fisher, Simon G
AU - van Dulmen, Sandra
AU - Eising, Else
PY - 2024
DA - 2024/05/07
PB - American Speech Language Hearing Association
SP - 1385-1399
IS - 5
VL - 67
PMID - 38625147
SN - 1092-4388
SN - 1558-9102
ER -
BibTex |
Cite this
BibTex (up to 50 authors) Copy
@article{2024_Engelen,
author = {Marscha Engelen and Marie-Christine Franken and Lottie W Stipdonk and Sarah Horton and Victoria Jackson and Sheena Reilly and Angela Morgan and Simon G Fisher and Sandra van Dulmen and Else Eising},
title = {The Association Between Stuttering Burden and Psychosocial Aspects of Life in Adults},
journal = {Journal of Speech, Language, and Hearing Research},
year = {2024},
volume = {67},
publisher = {American Speech Language Hearing Association},
month = {may},
url = {https://pubs.asha.org/doi/10.1044/2024_JSLHR-23-00562},
number = {5},
pages = {1385--1399},
doi = {10.1044/2024_jslhr-23-00562}
}
MLA
Cite this
MLA Copy
Engelen, Marscha, et al. “The Association Between Stuttering Burden and Psychosocial Aspects of Life in Adults.” Journal of Speech, Language, and Hearing Research, vol. 67, no. 5, May. 2024, pp. 1385-1399. https://pubs.asha.org/doi/10.1044/2024_JSLHR-23-00562.