Neurodegenerative disease management, volume 14, issue 5, pages 161-172

Mapping the journey of patients and care partners living with adult-onset leukoencephalopathy with axonal spheroids and pigmented glia: developing a framework for improvements in care

Holly A. Rutherford 1
, 
Beth K Rush 2
, 
Adam Smith 3
, 
Erin Sullivan 4
, 
Clarissa Martinez-Rubio 1
, 
Ali Toumadj 1
, 
R. La Piana 5
, 
Cynthia Cassandro 1
1
 
Vigil Neuroscience, Inc., Watertown, MA 02472, USA | 
2
 
3
 
Patient author
4
 
Sisters' Hope Foundation, Myerstown, PA 17067, USA | 
5
 
Publication type: Journal Article
Publication date: 2024-09-02
scimago Q2
SJR: 0.618
CiteScore: 4.3
Impact factor: 2.3
ISSN: 17582024, 17582032
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